We had a great weekend together and enjoyed our Thanksgiving.
Lexie has been having a rough time coming off high dose steroids cold turkey! They gave her a weaning dose prescription in case it was too hard for her, but she is determined to be done with those rotten steroids and has refused the weaning dose. She was so achey yesterday she didn't get out of bed much. Today seems to be improved and we are thankful that she is feeling a little better.
Steve and the girls left this morning and goodbyes are always hard. The silence is painful and I already miss the chatter and commotion that I am used to in our home.
Kali, Mack, Lauren and I went to the festival of lights at the Cincinnati Zoo last night and it was amazing. As beautiful as it was, it was very hard to have two opposite emotions at the exact same time. Lexie's absence was a sad reminder that she is sick and we sooooo wanted her to be with us. I miss seeing her enjoying herself with her sisters and friends. I miss home.
Not much on the agenda this week until Friday's admission to the hospital for Cytoxan and ARA-C.
Please pray for tolerance to this next round of chemo and protection from all of the horrific side effects. Its exciting to think about the "induction" phase of chemotherapy being over, but then I think.... one month down and 26 more months to go, it's overwhelming.
Thanks to Haley Koujaian, Jan Reddaway and Jeanette and George Flentge for your cards and words of encouragement. I can't tell you how much the mail means to us! It truly is the bright spot in our day and we look forward to hearing from you guys!
Lexie has been having a rough time coming off high dose steroids cold turkey! They gave her a weaning dose prescription in case it was too hard for her, but she is determined to be done with those rotten steroids and has refused the weaning dose. She was so achey yesterday she didn't get out of bed much. Today seems to be improved and we are thankful that she is feeling a little better.
Steve and the girls left this morning and goodbyes are always hard. The silence is painful and I already miss the chatter and commotion that I am used to in our home.
Kali, Mack, Lauren and I went to the festival of lights at the Cincinnati Zoo last night and it was amazing. As beautiful as it was, it was very hard to have two opposite emotions at the exact same time. Lexie's absence was a sad reminder that she is sick and we sooooo wanted her to be with us. I miss seeing her enjoying herself with her sisters and friends. I miss home.
Not much on the agenda this week until Friday's admission to the hospital for Cytoxan and ARA-C.
Please pray for tolerance to this next round of chemo and protection from all of the horrific side effects. Its exciting to think about the "induction" phase of chemotherapy being over, but then I think.... one month down and 26 more months to go, it's overwhelming.
Thanks to Haley Koujaian, Jan Reddaway and Jeanette and George Flentge for your cards and words of encouragement. I can't tell you how much the mail means to us! It truly is the bright spot in our day and we look forward to hearing from you guys!
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