November 20, 2014

Special thank you to Jeanette Dziegielewski, The Wedl Family of Wauconda and The Tracy Family of Beaverton, OR. 

Lexie woke up today to the excitement of the arrival of your care packages. 

Encouragement for the day - check!!! 

Thank you for loving our daughter whom you've never met! Your kindness and generosity is an example to us all. God bless you through your love and support for our family. So beyond grateful for everyone who is standing with us through this long and exhausting battle against cancer. 

Hugs and Love!

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Lexie has been attending school at the hospital 2 hours a day. She loves her teachers and has been working hard to catch up on her work. This has been a very positive experience for her and we are so grateful for their investment in Lexie's education and loving care they provide to her.

Gearing up for chemo tomorrow. We will be spending part of the day in Day Hospital, but praying she will tolerate chemo and be able to return to the apartment in the evening. 

 

Anxious for visitors to come over Thanksgiving break. I cannot even believe the holidays are upon us. I think we will celebrate Christmas in July! 

 

Still fighting with insurance and the endocrinology department for coverage of Mackenzie's growth hormones. To the best of my knowledge, nothing has been done yet. I spoke with the pharmaceutical company that has been supplying growth hormone to her while we have been in appeals and they will not ship more because they have been unable to obtain a copy of the appeal from Endocrine despite several requests. I'm sure its not even written yet! I have so much pent up aggression I'm ready to go for the jugular! Why can't people do their jobs?!?!

Please pray as God leads you... I'm tired and can't think of all our requests. 

 

Praying for the Holy Spirit to intercede tonight and bring those requests before our Almighty God. 

 

More tomorrow after chemo... xoxo