Tuesday, December 30, 2014

December 30, 2014

It was bound to happen at some point ... We are in the ER - Lexie has a 102 fever and a severe headache. She will be admitted for at least 48 hours for IV antibiotics and blood cultures. But we are stuck here until the fever is gone and she won't be starting her next round of chemo on Friday.

Trying not to feel discouraged or worried but between the lack of sleep and all the baggage I carry its a struggle.

Please pray for Lexie's fever to break and a short hospital stay.
I'll keep you posted.
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Settled in our room. Encouraged by the good news that Lexie's blood counts are good! Her WBC is 2.5 and ANC is 1100 (for all my medical friends) which means her ability to fight infection isn't horribly compromised. And MAYBE we can stay on track and still get chemo on Friday. 
 
She started having severe headaches yesterday though so we are still trying to find the cause and she does need a blood transfusion, hopefully that will help her to feel better.
Lindsay's pace maker has been in constant use. The good news is that she has noticeably improved energy and endurance/tolerance to activity. It's remarkable! Honestly, it's amazing. She goes back on Friday to see if the pacemaker has to be adjusted or if her heart just really needs that much assistance. She is still having a hard time getting used to all the sensations in her chest ... She doesn't like it.
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This is so like God ... Knowing I needed encouragement today, I got a call from endocrinology and Mackenzie's growth hormone appeal was approved through insurance!

They said the approval was based on the "parent letter" I wrote which God equipped me to write through my nursing experience as a case manager. Amazing! We are still waiting to see what the co-pay will be, she said anywhere between $15-150 per month. Sure beats the $2000/month that it would have cost out of pocket.

God is so good!

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